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Patient-Reported Indicators Surveys (PaRIS)

 

The Patient-Reported Indicators Surveys (PaRIS) benchmark outcomes and experiences of health care that matter to people.


With a mandate from OECD Health Ministers, the OECD launched in 2017 the 
Patient-Reported Indicators Surveys (PaRIS) initiative, with the goal of making health systems more people-centred. At the core of people-centred care is our ability to systematically collect data on what matters most to patients.


Why PaRIS? Although health systems across the OECD spend around 9% of their GDP on health, it is shocking how little we know about whether health systems are truly delivering what people need. The outcomes achieved for patients and how they experience care are rarely measured in a systematic and rigorous way. It is difficult to improve what is not been measured. The PaRIS initiative addresses this major gap.

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WHAT IS PaRIS ?

The objective of PaRIS is to support the creation and collection of state-of-the-art, internationally comparable patient-reported indicators to advance high performing, people-centred health systems.
To do this, PaRIS is undertaking two works streams:

  • First, PaRIS helps to accelerate and standardise the international monitoring of patient-reported indicators in areas where such indicators of health care quality and outcomes are already used. Countries within and beyond the OECD are collaborating to develop patient-reported indicators, with three working groups currently focusing on hip and knee replacements, breast cancer, and mental health care.
  • Second, PaRIS is developing a new international survey of outcomes and experiences for patients with chronic conditions who are treated in primary health care or other ambulatory health care settings, where little is being measured at present.

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The PaRIS International Survey on Patients with Chronic Conditions

The PaRIS Survey of Patients with Chronic Conditions will be the first international survey of patient-reported health outcomes and experiences of adults with one or more chronic conditions who are treated in primary or ambulatory health care settings. The PaRIS survey fills a critical information gap in primary health care, focusing on:

  • Patient-Reported Experience Measures (PREMS), which measure how patients experience health care and refers to practical aspects of care, such as care co-ordination, waiting times and provider-patient communication
  • Patient-Reported Outcome Measures (PROMS), which measure how patients assess the results of the care they receive. PROMS contain information about outcomes such as quality of life, pain, physical functioning and psychological well-being.

Results from the survey will show how key outcomes and experiences vary across and within countries. This will allow countries to benchmark and learn from each other’s approaches. It will also foster a dialogue with service providers about how to further improve the performance and people-centredness of primary health care services.

Developing the survey on an international level rather than a national level has two main benefits:

  • It offers opportunities for international learning about effective strategies for supporting people-centred care and measuring progress
  • It brings efficiencies and cost-savings by sharing the costs of developing, testing and validating the tools to measure patient- reported outcomes and experiences

Read our latest brochure on the PaRIS survey of Patients with Chronic Conditions.

KEY PRINCIPLES OF PARIS

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KEY DOCUMENTS

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